Wednesday, April 13, 2016

Waiting is Not Easy...

It has been so long since I have posted an entry, there has been a few things happening in that time.

To update on the IVF front, we had our tests and all came back great! No cysts, no fertility issues, we are good to go. We were added to Ontario's funded IFV wait list as of January 14th. It seems they are taking on 500 patients per fiscal year and they are already through the first group. We seem to be in the second and they have already begun to contact people - including one who was added just six days before us!

I have been in near constant contact with other ladies from the clinic who are also waiting and it has been a Godsend. We have a running list of names and dates so we can get a very general idea of how the list is moving along. The problem here is the information we have gathered conflicts with what we keep getting told - so we really don't know what we can expect.

I spoke some time ago with the scheduling nurse at the clinic and she said it is looking like we can expect a call late fall or early winter. With the rate the OFC ladies' list is going to was looking like sooner.

I have also been in touch with Genesis Genetics, who will be taking care of the PGD portion of our journey. They need me to have a genetic blood test done confirming my Neurofibromatosis - I have never had one done so the clinic has referred me to CHEO for that.

Since I have been waiting to hear back on the testing for a while and my period has been awol for two months (pregnancy tests negative) I called to talk to my doctor's assistant. She notified him of my period and I am waiting to hear what the next step there is. She also told me they heard back from CHEO. They have triaged my case as 'semi-elective' and I am looking at May-July to hear back from them. I was a little taken aback by the time frame given how long ago I was referred. Dr. Haebe's assistant then re-assured me there is lots of time - I am looking at 9-12 months on the waiting list.

From what the ladies on the forum are saying, we are all being given so much conflicting information it is so frustrating. I understand though with this being a new program there are going to be bumps. I just hate all of the waiting!

In the meantime it is really nice to have such a great group of ladies to talk to who are going through the same thing!

Sorry for the rushed post, I am going to try and be more consistent in the future!

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